Improving healthcare for Black African and Caribbean communities

A team from the NHS Black Country Integrated Care Board (ICB) has been leading on a unique project to help improve healthcare for Black African and Caribbean communities in the Black Country.  

Using funding from the West Midlands Cancer Alliance, the Involvement Team has worked with partners from across the Black Country to understand the barriers Black African and Caribbean women face when attending breast screening appointments and raise awareness of the signs and symptoms of breast cancer. 

As part of the project, eight local voluntary and community sector organisations were commissioned to host conversations with local women in the community to help identify first-hand the barriers and stigmas in attending screening appointments or presenting at GPs with early symptoms. 

The insight gathered from these groups was used to co-design solutions and interventions over a course of three workshops, led by Dr Martin Bollard, Head of Nursing in the Faculty of Health and Wellbeing at the University of Wolverhampton.  

This includes an infographic which tells their stories, which can be found on the Black Country ICB website here, and a video of a local mother and daughter having a myth busting conversation, which can be viewed on YouTube here.  

Marie-Claire Kofi is Chief Executive Officer of Plasma of Hope, a charity that provides supports for people living with sickle cell disease across the West Midlands and is one of the organisations that took part in the project.  

She said: “When I heard about the project, I knew immediately that I wanted to be involved as it’s an important topic that has a huge impact on our community and we simply don’t talk about it enough. We hosted a number of sessions with the women and families that our organisation supports to discuss breast cancer, and we got a lot of different perspectives. Some assumed that only people over a certain age get breast cancer, and many didn’t know how to properly check their breasts. 

“A key theme we spotted was that families didn’t want to talk about cancer, as they believed talking about it meant you were more likely to get it as you are welcoming it in. As a black woman, I can resonate with this, as I was also brought up not to talk about certain things. Because of the culture we come from, where topics like health issues aren’t discussed, there’s a real lack of awareness within the black community.  

“Not talking about breast cancer doesn’t make the problem go away, so it was great to have these important conversations and help people understand and recognise the changes and what to look out for and dispel some of the myths around breast cancer.” 

Althea Wint is the founder and director of THIA, a not-for-profit organisation supporting the wellbeing of children and their families in the Black Country and Birmingham that also took part in the project. She said: “We held a number of interactive workshops in the community which took place over a week. The turnout was fantastic – we had more than 50 women attend, as well as men too who wanted to find out how they could support their partners, family members and friends when it comes to breast cancer.  

“The biggest barriers that we found from the women we spoke to were around feeling ashamed of their bodies, not knowing how to examine themselves, the fear of not knowing where to go or what was next and a fear of not being taken seriously by their doctor. This project is something that is also very personal to me. I had a breast cancer scare and I have had close friends and family affected by breast cancer. 

“I think representation is really important as well when it comes to making people feel comfortable and engaged. Something that worked really well at our sessions was having an example of a black breast to demonstrate how to check your breasts for lumps. It might seem small and unimportant, but being able to show women a breast they could relate to and identify with, rather than a white one, made such a difference. I have been working with the screening team to identify a diverse black breast cancer model for future sessions.” 

A number of the organisations who hosted the sessions have since taken part in Cancer Champion training. Hosted by the NHS Black Country ICB, the training program is designed in partnership with Cancer Research UK and gives participants the knowledge and confidence to have conversations in their community about cancer prevention, the importance of screening and early diagnosis.